A dad who raised £120,000 towards the cost of research into his son’s rare condition by cycling thousands of miles is preparing to get back on his bike tomorrow (Friday) for another fundraiser.
Richard Page, of Barkby, will be joined by 15 other riders making their way 135 miles to Burnley to watch his beloved Leicester City’s Premier League game in the north-west of England.
Proceeds from the pedal will go towards a revolutionary new therapy which could ease the symptoms of seven-year-old son Ellis, who suffers from chromosome disorder MECP2 Duplication Syndrome.
Richard’s party aim to cycle 80 miles to Macclesfield and complete the remaining 55 to Burnley’s Turf Moor stadium after an overnight stay. Last year he led a remarkable fundraising cycle to all 23 City away matches, covering a total of 3,500 miles.
“I never thought I would get back in the saddle after last year,” said Richard. “I started riding again four weeks ago to get ready for this trip and I feel OK and confident I will be able to handle it.”
Richard and wife Leanne flew to Texas last year to deliver the money he raised from his cycling challenge and to visit scientists working on research into the condition, which affects muscle tone, motor skills and learning ability. They took Ellis to see his beloved Mickey Mouse in Disneyland before they came home.
The new treatment would help improve Ellis’s condition in the short term while the search for a cure is identified and eventually clinically approved.
Sponsor Richard at www.justgiving.com/textellis