A BEAUTY therapist has pledged to lose her treasured locks if she raises £1,000 for charity in her baby daughter’s memory.
Lucy Wright (30), of Southwell Close, Melton, is doing her sponsored head shave for the Jennifer Trust for Spinal Muscular Atrophy – the only UK-based charity that helps families cope with living with the disease.
Lucy lost her daughter, Georgia, to the terminal degenerative disorder three years ago.
Since then she has devoted her time and energy towards raising funds for the charity which has helped her family and others as well as raising awareness of the disease.
To date she has raised nearly £4,000 for the charity.
Lucy said: “Georgia was my second child born in January 2008. She was incredibly beautiful in every way.
“In May 2008 she was diagnosed with spinal muscular atrophy (SMA) type one. My husband, Simon, and I had never heard of this condition before and we were told it was genetic.
“We were also told that Georgia was unlikely to make her second birthday as the condition wastes muscles away so respiratory failure was likely.”
Georgia died 12 weeks after diagnosis at seven months and 19 days old.
Lucy added: “Just before Georgia’s death I made a promise to her to raise awareness of this crippling condition.
“The most important awareness raising I’ve achieved to date is to set up a training programme for nursery nurses, health visitors and any other health care worker involved in caring for a baby, educating them about the disease.
“The training programme is now compulsory in Leicestershire and Rutland Primary Care Trust. My work carries on to make that compulsory throughout the UK.”
Lucy has set a target of raising a minimum of £1,000 by August 22 to shave her head in Georgia’s memory. This is a very special date as it will be Georgia’s third anniversary gone from her family.
Lucy said: “The Jennifer Trust were absolutely brilliant. It’s an amazing charity that helps children and families live and cope with SMA.
“They lent Georgia toys worth more than £1,000, all specialised for babies with limited movement, and also, as a family, the support was amazing.”
She added: “If I reach £1,000 by August 22 I will shave all my hair off! This money will go directly to the Jennifer Trust. This is a massive thing for me as I am a beauty therapist and I do love my hair!
“I miss Georgia so much. Every day in many ways my world is incomplete and I know it will never feel or be complete again.
“The promise I made to Georgia stands now and will stay strong until the day I die.”
l Anyone who would like to make a donation can do so by visiting www.justgiving.com/georgiawright08
l For more about Spinal Muscular Atrophy (SMA) log onto www.jtsma.org.uk